Transition Study from Child to Adult Services - Let Your Experiences be Heard
Volunteers Still Needed!
Researchers at Trinity College Dublin are inviting young people with cystic fibrosis (CF) and parents of young people with CF to take part in research on moving from child to adult healthcare services (TRYCIS research project). This research is being conducted with young people attending the cystic fibrosis clinics at the National Children’s Hospital Tallaght, Our Lady’s Children’s Hospital Crumlin or St Vincent’s University Hospital Dublin. At CFAI, we believe this is a very important piece of research and are happy to pass on information about the study to our members and encourage you to get involved.
Taking part involves a confidential interview lasting approximately 30-60 minutes at a time and place that is most convenient for you. The research team, led by Professor Imelda Coyne, wish to understand the needs and experiences of young people and their families before, during and after the move from child to adult healthcare services. The study will identify the changes required to ensure that standard practice reflects best practice.
If you are interested in taking part, are between 14 and 25 years of age, and attend one of the hospitals mentioned above, or if you are a parent of a young person attending one of these hospitals, please get in touch with Dr. Aisling Sheehan to find out more information. Please note that if you are under 18 years of age, we will need permission from your parent or guardian for you to take part. Aisling can be contacted by email at firstname.lastname@example.org or by telephone at (01) 8968511 or 085 7874865.
The TRYCIS research team