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This ‘call to action’, supported by European and Irish expert bodies and patient organisations, urges immediate Government action to address
The Dublin Carer’s Association are hosting several events in Dublin during Carer’s week and Family Carer’s are invited to attend. Click here to find out more.
CF Ireland asked the HSE to develop a Home IV's information leaflet about the change in the contract provider for 'home IV's' (which the HSE call 'OPAT'), including a help-desk number to help assist in ensuring a smooth transition from one provider to another.
Anam Cara, the national organisation that provides support services to bereaved parents and families is hosting a Bereavement talk in Dublin. This event gives parents an opportunity to hear an experience bereavement professional talk about the many challenges families have to face into after the death of their son or daughter.
Venue: Dominic's Community Centre, 60 Avonbeg Gardens, Tallaght, Dublin 24
Date: Monday, 13th May 2013
Time: 7.30pm – 9.30pm
Click on the link above to find out more.
Vertex recently announced promising results from a Phase 2 clinical trial of VX-661 in combination with Kalydeco. Click on the link above to find out more.
As part of our annual conference and awareness week, we would like to summarise how CFI has made a difference for better CF services in 2012.
Mobility Allowance and Motorised Transport Grant schemes are a vital part of the support
infrastructure to help our members live and to be active in the community. Please take the time to highlight the consequences of changes to these schemes for people with Cystic Fibrosis.
CF Ireland won the Irish Healthcare 2013 award for Outstanding Contribution.
On 26th February, Vertex announced the initiation of Phase 3 trials of VX-809 in Combination with Kalydeco (Ivacaftor) for the treatment of people with Cystic Fibrosis who have two copies of the Delta F508 mutation.
The mobility allowance and motorised transport grant schemes have been discontinued with immediate effect for new applicants and a new scheme will be introduced in 4 months-time.
CF Ireland response to the news on Kalydeco being made available in Ireland
CF Ireland calls on the HSE and the drugs company vertex to agree a fair price for the ground breaking Cystic Fibrosis drug ‘Kalydeco’ as soon as possible.
The NHS is to fund Kalydeco (Ivacaftor) from 1 January 2013
Last Updated June 2013