News
Focus on Travel Insurance [ 31-05-2010 ] VIEW MORE »
Cystic Fibrosis Centre Delay [ 14-04-2010 ] Press Release
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Budget Summary 2010 [ 14-12-2009 ] VIEW MORE »
H1N1 (Swine Flu) Info [ 04-12-2009 ] Please see latest Info on H1N1 received from the HSE. (Bulletin 4)
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H1N1 (Swine Flu) Info [ 26-11-2009 ] Please see latest Info on H1N1 received from the HSE.
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Vicks Sinex Nasal Spary Bacteria Alert [ 24-11-2009 ] VIEW MORE »
Important New Advice from the HSE Re: H1N1 Virus/Swine Flu [ 17-11-2009 ] VIEW MORE »
H1N1 (Swine Flu) Info [ 30-10-2009 ] VIEW MORE »
CFAI Welcomes HSE Report on Services for PWCF [ 13-10-2009 ] VIEW MORE »
CFAI Welcomes Publication of Report on CF Services in Ireland [ 13-10-2009 ] VIEW MORE »
CFAI Welcomes Double Lung Transplant [ 09-10-2009 ] VIEW MORE »
H1NI (Swine Flu) Guidelines for PWCF [ 14-08-2009 ] VIEW MORE »
Statement from Philip Watt , CEO Cystic Fibrosis Association of Ireland. [ 10-08-2009 ] VIEW MORE »
Hot topics [ 22-07-2009 ] VIEW MORE »
H1N1 Virus (Swine Flu) UPDATE [ 17-07-2009 ] VIEW MORE »
CFAI to write to An Taoiseach on cutbacks in McCarthy Report [ 17-07-2009 ] VIEW MORE »
65 Red Roses [ 15-06-2009 ] The Irish Film Institute is proud to present the powerful documentary, 65_RedRoses, at this year's IFI Stranger Than Fiction Festival which runs from June 18th - 21st.
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Results of 2009 Annual Raffle [ 07-05-2009 ] The winners of the CFAI Annual were drawn at a function at the post conference dinner held at Rochestown Park Hotel, Cork on April 25th 2009.
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CFAI Launch Buy a Brick Fundraising Campaign [ 01-05-2009 ] The Cystic Fibrosis Association of Ireland (CFAI) launch a major National Campaign to fundraise for dedicated CF units throughout the country.
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2009 CFAI Conference on line [ 23-04-2009 ] CFAI are please to announce that this year's conference will be available on line for those of you who cannot attend in person.
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Easter Message From Chairman [ 09-04-2009 ] VIEW MORE »
CFAI 11th Hour Plea to Minister Harney [ 07-04-2009 ] VIEW MORE »
Statement - from Press & Communication Office of Department of Health and Children [ 07-04-2009 ] VIEW MORE »
Statement from Orla Tinsley [ 07-04-2009 ] VIEW MORE »
CFAI Reaction to Ministers Statement [ 07-04-2009 ] VIEW MORE »
Irish War Crimes [ 31-03-2009 ] VIEW MORE »
HSE Talk to Press but not to CF Patients [ 31-03-2009 ] VIEW MORE »
PWCF Book Launch [ 27-11-2008 ] Michael Morrison will be launching his book entitled "A Path Less Conventional" on December 6th at Kilcannon Garden Centre, Old Dublin Road, Enniscorthy, Co Wexford. Michael extends his invitation for anyone interested to attend.
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Second Chance Ball [ 30-10-2008 ] Support Organ Donor Awareness. The 'Second Chance Ball' will take place in the Four Seasons Hotel, Dublin on Saturday, November 22nd, 2008. This is a fund raising event to generate monies to promote an organ donation awareness campaign. The evening will kick off with a champagne/Guinness reception at 7.30pm, followed by dinner at 8.30pm and dancing to music from the 'Housem8s' until 2.00am. Tickets are euro175 each, and tables can be of 10 or 12 people. If you are interested, please contact Brenda Finn on 086 2340225.
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Annual Service of Remembrance & Thanksgiving [ 30-09-2008 ] Families of organ donors, transplant recipients, patients, carers and the medical profession are invited to attend the Annual Service of Rememberance & Thanksgiving at Corpus Christi Church, Home Farm Road, Dublin 9 on Saturday October 4th, 2008.
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Orla Tinsley Joint Winner of Young Person of the Year Award 2008 [ 15-09-2008 ] At an awards cermony that was televised on RTE from City West on Saturday 13th September Orla Tinsley received the Young Person of the Year Award for 2008.
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National Children of Courage Awards - Share a Dream Foundation [ 10-09-2008 ] Closing date for all entries for the National Children of Courage Awards is Monday 20th October 2008. For further details double click on this summary.
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New beds open at St. Vincent's University Hospital. [ 06-08-2008 ] VIEW MORE »
Well done, Paul! [ 01-08-2008 ] Paul Brazzill of Barntown in Wexford completed a 200k run through Wexford, Waterford, Kilkenny, Carlow and returning to Wexford in triumph on Saturday evening 19th July. Paul undertook this challenge to raise awareness and raise funds for Cystic Fibrosis and Marie Keating Foundation.
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CFAI wins PR Award for Excellence 2008 [ 27-06-2008 ] At an awards ceremony in Dublin's Mansion House CFAI and their PR Agency PCC won the Award for Excellence in Public Relations 2008 for the Sick Waiting Campaign
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Edmondstown Golf Classic 6th June all welcome [ 08-05-2008 ] A Golf Classic in aid of cystic fibrosis will take place on 6th June at Edmonstown Golf Club, Dublin. Fees for a team of four are €700. Raffle tickets are also available - €5 for a book of 5 tickets. Further information is available from Grace Barrett at CF House 01-4962433.
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April a good month for lung transplants for CF patients [ 28-04-2008 ] Two successful lung transplants took place this month on Irish CF patients in Newcastle. The Association wishes both patients a speedy recovery.
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Results of 2008 Annual Raffle [ 25-04-2008 ] The Annual Raffle took place in the Boyne Valley Hotel on 12th April. First Prize was a holiday for two in Bali. Second Prize was a €1,000 Holiday Voucher. Third prize a 32inch LCD Flat Screen TV.
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Healthcare Innovation Awards 2008 [ 23-04-2008 ] CFAI has been chosen as a finalist in the Irish Healthcare Innovation Awards 2008.
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Organ Donor Awareness Week [ 14-03-2008 ] Organ Donor Awareness Week 29th March - 5th April 2008
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HSE & Pharmacy Dispute [ 28-02-2008 ] Procedures to be followed if your local pharmacy has withdrawn services
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Annual Conference 2008 [ 13-02-2008 ] Annual Conference 11-13th April 2008 make you bookings directly with The Boyne Valley Hotel as described below.
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Charity Soccer Challenge [ 08-02-2008 ] A soccer challenge will take place between a Garry Kelly Selection and Drogheda United at United Park, Sunday March 2nd at 3pm in adid of the Drogheda Branch of CFAI. All supporters welcome.
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Kiss of Life DJ Party in aid of CF - March 9th [ 08-02-2008 ] Spirit of Voice are holding a special DJ party at Tosch Bar, Meyrick Hotel, Eyre Square, Galway. Further details available from www.spiritofvoice.com There will also be an auction of sports memorabilia and donations of items are welcomed.
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PWCF Artist Exhibits at st-art GALLERY - winter exhibition [ 08-11-2007 ] Brian Halligan will be exhibiting art at the st-art:now - winter exhibition between 15th and 21st November. A charity auction of Brian's painting entitled Cherry Tree will take place on the opening night. All support would be welcome.
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Supplementary Admissions Procedures to Higher Education for Students with a Disability [ 07-11-2007 ] The National College of Ireland in association with AHEAD and DAWN (Disability Advisors Working Network) are holding a one day event focusing on students with a disability considering Higher Education options in Ireland on Wednesday 5th December 2007.
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PWCF Christmas Party 2007 [ 15-10-2007 ] Christmas party notice and application form.
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Flu Vaccination Campaign 2007/2008 [ 01-10-2007 ] HSE to launch National Media Campaign on 8th October
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Council Of Europe Conference on Organ Donation & Transplantation [ 25-09-2007 ] A conference will take place at the Royal Marine Hotel, Dunlaoghaire on 13th October as part of the 9th European Day for Organ Donation and Transplantation.
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CFAI delegation meets with the Taoiseach [ 05-09-2007 ] A delegation met with the Taoiseach, The Minister of Health, the CEO of the HSE and six other representatives for over an hour to outline our immediate requirement for improved facilities.
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First Double Lung Transplant on CF Patient released from Mater Hospital today. [ 10-08-2007 ] The Association is pleased to confirm that the first CF recipient of a double lung transplant in an Irish hospital was discharged from the Mater Hospital today. Our best wishes go to Paul and his family.
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Guinness Hurling Boot Camp - Congratulations & Sincere Thanks to Charlie Redmond who generated €25,765 for Cystic Fibrosis [ 10-08-2007 ] Congratulations to Charlie Redmond, former Dublin footballer and GAA All-Star, who won the Skills section of The Guinness Hurling Boot Camp competition on TV3. In the process, Charlie generated a total of ?25,765 for Cystic Fibrosis made up of ?25,000 prize money and €765 generated through text voting.
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First Double Lung Transplant on CF Patient took place in Mater Hospital [ 26-07-2007 ] It has now been officially confirmed that a double lung transplant on a person with CF took place on the 16th July at the Mater Hospital Dublin.
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New Officers appointed At NEC Meeting [ 02-07-2007 ] The Honourary Officers of the Association for 2007 are now confirmed as follows: Sean O'Kennedy - Chairperson; Mary Lane Heneghan - Vice Chairperson; Seamus Bohan - Secretary; and John Coleman - Treasurer The Association would like to thank all those Officers, NEC Representatives, PWCF Representatives and Branch Committee members who give freely so much of their time.
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2nd Cork 65 Roses Ball [ 17-05-2007 ] The 2nd Cork 65 Roses Ball will be taaking place this year on October 13th 2007 at the Radisson SAS Hotel, Little Island, Cork.
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Prime Time broadcast on CF can be viewed on RTE website [ 04-05-2007 ] VIEW MORE »
Prime Time Broadcast Confirmed by RTE [ 02-05-2007 ] The CF feature will be broadcast on RTE on 3rd May 2007.
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Prime Time CF Report- Broadcast date change [ 30-04-2007 ] Due to the announcement of the General Election the broadcast date has again changed. RTE cannot confirm as of yet when this programme will be aired but it will be either be on the 2nd or the 3rd of May.
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TV A.M. Coverage Date Changed [ 24-04-2007 ] Coverage of CF & Build4Life Project on TV3 has changed to 4th May at 7:40am instead of 30th April.
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Prime Time CF broadcast date changed [ 24-04-2007 ] Due to news developments the broadcast date for the CF feature has been changed to Tuesday May 1st RTE 1.
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Primetime on RTE [ 20-04-2007 ] A six minute recorded feature on the Sick Waiting Campaign is scheduled to be covered on Primetime - RTE 1 on Thursday 26th April
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TV A.M. Coverage [ 20-04-2007 ] CF and Build4Life Project to feature on TV3 at 7.40 a.m. on 30/4/2007
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Sick Waiting Campaign [ 18-04-2007 ] This campaign was covered by the Irish Times and the Irish Examiner on 18/4/2007
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The Right Hook - Newstalk 106 [ 18-04-2007 ] Rory Tallon and Godfrey Fletcher were interviewed by George Hook on his show on 17/4/2007
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Irish Times Health Supplement [ 17-04-2007 ] CF was covered in a feature article in the Irish Times Health Supplement on 17/04/2007
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CFAI Launched Pre Election Campaign [ 17-04-2007 ] SICK WAITING CAMPAIGN launched with a photocall outside Leinster House
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Presentations from Annual Conference Can be viewed on CFAI website [ 13-04-2007 ] A new section under News has been created on the website entitled Conference clips. From this section it will enable those who were unable to attend the conference to view the presentations of the speakers.
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Annual Raffle Winners [ 05-04-2007 ] Congratulations to the winners of the CFAI annual raffle.
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CF gets slot on RTE Six One News [ 27-03-2007 ] CFAI succeeded in getting coverage on the Six, Nine and Eleven o'clock national TV news on 26th March.
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CFAI to launch own Organ Donor Awareness Material [ 20-03-2007 ] On the 26th March at the Mansion House Dublin, the Minister of Health will officially launch Organ Donor Awareness week. On the same day CFAI will unveil our poster and postcard to promote organ donation.
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Walk to the Annual Conference [ 28-02-2007 ] CF Supporter to walk 260km from Drogheda to Galway between 19th March and 23rd March 2007.
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Seoige& O'Shea RTE 1 [ 22-02-2007 ] Monday 26th February 2007 4:30pm. Members of the CF Association will be interviewed on the Seoige & O'Shea Show on RTE 1.
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CEO's Report to NEC released [ 15-02-2007 ] At the last NEC meeting it was decided that a copy of the CEO's Report that is made available to NEC Members should also be posted on our webpage. A special section will be created under Publications but until this is ready the latest copy will be available under News.
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Mentoring scheme for graduates with disabilities [ 07-02-2007 ] Round 2 of a three year pilot project - WAM - Willing Able Mentoring Project is currently currently accepting applications.
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Annual Conference 2007 23 - 25 March [ 07-02-2007 ] Annual Conference 2007 - Corrib Great Southern Hotel, Galway, Friday 23rd - Sunday 25th March 2007
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time4life Fundraising Scheme [ 02-02-2007 ] Set up by Zoe & David Woodward to raise funds and awareness on behalf of the Cystic Fibrosis Association of Ireland
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National Awareness Week 2007 [ 29-01-2007 ] The Cystic Fibrosis Association of Ireland (CFAI) has today (January 29th) appealed to the public to support flags days which will take place throughout the country during National Cystic Fibrosis Awareness Week (January 29th-February 4th) in a bid to raise funds to support over a thousand people in Ireland who are living with Cystic Fibrosis - Ireland’s most common life-threatening inherited disease. The 22 branches of the CFAI will be involved in selling pins and dolls, at a cost of €2 each, in towns and cities throughout the country. The funds raised will be used to support the CFAI’s extensive range of services providing advice, support and care services to patients and their families. A full Press Release is available under the News - Press Release Section of the website
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CFAI Delegation Addresses the Joint Oireachtas Committee on Health & Children [ 18-01-2007 ] VIEW MORE »
Telephone survey [ 08-01-2007 ] A random telephone survey of our PWCF members will be carried out commencing 8th January 2006.
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New CD "Country Tributes" launched. [ 02-01-2007 ] Irish Country and Western singer George Langan releases new CD "Country Tributes"
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Killiney Gala Ball [ 09-11-2006 ] Photographs now available for viewing at our web Photo Gallery.
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2006 CF Christmas Cards now available [ 25-10-2006 ] Christmas cards in aid of CFAI are now available through our branches and can also be purchased directly from our Online Shop
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Spirit of Voice Festival Galway - November 1st to 5th [ 17-10-2006 ] The Spirit of Voice inter-cultural festival in Galway City in aid of the Cystic Fibrosis Association of Ireland this year hosts 10 concerts, 5 workshops and children's storytelling events. Tickets on sale at Mulligan records, 091568340 or at www.spiritofvoice.com
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Benefit Night in Aid of Cystic Fibrosis Tuesday 17th October 2006 [ 16-10-2006 ] A special performance by Rachel O'Brien and special guest will take place in Slatterys Capel Street on Tuesday 17th October 2006. Doors open at 8pm and admission is €8.
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Annual Service of Remembrance & Thanksgiving [ 29-09-2006 ] A service of Remembrance & Thanksgiving to honour and remember the special people who have donated their organs so that others may live will be held at Corpus Christi Church, Home Farm Road, Dublin 9 on Saturday, October 7th, 2006. All are welcome by kind invitation of the Irish Kidney Association.
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National Children of Courage Awards - Share a Dream Foundation [ 25-09-2006 ] Do you know a child of courage? The Share a Dream Foundation is now accepting applications for a National Child of Courage Award closing 31st October 2006.
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Date Set for 2007 Annual Conference [ 23-08-2006 ] The 2007 Annual Conference will be held in Galway between 23rd - 25th March 2007
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Date set for National CF Awareness Week & Doll Day for 2007 [ 23-08-2006 ] Date set for National CF Awareness Week & Doll Day for 2007 - 29th January to 4th February - reserve these dates in your diary.
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CF Breathe For Life Ball Killiney Castle Hotel [ 23-08-2006 ] 4th November 2006 CF Breathe For Life Ball Killiney Castle Hotel - book your tickets now.
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Potential New Therapy for CF [ 16-08-2006 ] Potential New Therapy for CF Patients-aimed at reducing mucus production.
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Annual Conference - Road to the Future [ 31-03-2006 ] The Association is pulling out all the stops to put on a quality Conference for you again this year. The Official Programme is at the finalisation stages and will be sent out shortly. The theme for this year's conference is the "Road to the Future".
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The Treatment of Cystic Fibrosis in Ireland: [ 01-05-2005 ] Problems and Solutions 2005 - "An independent review of cystic fibrosis services in Ireland carried out by Dr. Ron Pollock and published on Monday, 7th February 2005 shows that the majority of adults with cystic fibrosis are being treated in facilities that are dangerous."
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Outside the Box [ 01-03-2005 ] The programme for and about people with disability, with presenter Olan Mc Gowan.
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Tax relief on Medical Expenses : [ 01-06-2004 ] We received the following information from David Fitzgerald (CF Parent) whom we would like to thank for his contribution.
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