The Treatment of Cystic Fibrosis in Ireland:
Problems and Solutions 2005 - "An independent review of cystic fibrosis services in Ireland carried out by Dr. Ron Pollock and published on Monday, 7th February 2005 shows that the majority of adults with cystic fibrosis are being treated in facilities that are dangerous.""An independent review of cystic fibrosis services in Ireland carried out by Dr. Ron Pollock and published on Monday, 7th February 2005 shows that the majority of adults with cystic fibrosis are being treated in facilities that are dangerous."
An external review of cystic fibrosis facilities was commissioned by The Cystic Fibrosis Association and carried out during 2003/2004. The final report summarises the findings of Dr Pollock's study of the services in the Republic of Ireland for people with cystic fibrosis and points out how satisfactory levels of service should be delivered.
This is the first time that the staggering distance between the way cystic fibrosis services are currently delivered and the way they should be delivered has been so accurately measured.
While Dr Pollock's analysis of current services makes disturbing, and at times uncomfortable reading, his recommendations are cause for optimism.
They represent a blueprint for the future care for people with cystic fibrosis and must be acted on immediately.
The Association's primary objective is to make sure that the nine Specialist Cystic Fibrosis Centres recommended in this report are established without delay.
This is the only way that the chasm between current services and acceptable services can be bridged. I urge you to become directly involved in delivering this vision.
Carl Rainey
Chairman CFAI
February 2005
Launch of Pollock Report
During the week following the launch of the report a lot of media attention was generated. CFAI received the following coverage:
- Television coverage by RTE, TV3 & Sky
- Radio coverage on the Pat Kenny show, RTE1
- Newspaper coverage with various papers
Thanks to all who contributed to the campaign by giving newspaper interviews with their personal stories, spoke on the radio & lobbied their local politicians. It is vital that the momentum continues from all parties involved and that continuous pressure is applied to the government to deliver on its promises.
Download PDF's of a summary of Dr Pollock's report and a Newsletter by The Cystic Fibrosis Association of Ireland illustrating some of the deficiencies and unnecessary hardships experienced in Ireland by people with cystic fibrosis and their families.
Dr Pollock's Report
The report and report cover are available as two separate files for download see attachments below.
Newsletter
Download a PDF version of the Newsletter see the attachments section below.
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Photos:
Attachments:
Dr Pollock's Report download a PDF of the report cover (99kb)(pdf)- Dr Pollock's Report download a PDF of the report content (358kb)(pdf)
- Download a PDF version of the Newsletter(pdf)
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