Missing Medication

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Missing Medication

Postby EvanS » Mon Jan 23, 2012 2:10 am

Hey.

So I have read a few comments on here about people not doing physio, or missing it.

Could anyone tell me why?

Also, how often do people miss their medication. Like Saline, pulmozyne, Creon, multiple vits etc.
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Re: Missing Medication

Postby pinkfink9 » Thu Feb 02, 2012 9:53 pm

i can tell you from my daughters point of view, she is nearly 19.
its time!!
if someone phones you 5 mins after you got up saying lets go to the beach, you go. out is better than in! i would say she misses about 4 /5 nebs a week.
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Re: Missing Medication

Postby EvanS » Sat Feb 11, 2012 12:26 am

I'm very confused? Going to the beach means missing meds??

4/5 nebs a week? How many does she take a week?
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Re: Missing Medication

Postby skinny » Mon Feb 20, 2012 5:26 pm

id say if ur body isnt letting u know when u miss them dont worry about them sometimes less is more!!!!!!
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Re: Missing Medication

Postby pinkfink9 » Fri Mar 02, 2012 8:33 pm

she does 2 anti biotics a day, a saline and a pulmazyme.
the anti biotics are done at least once a day, most days twice so might miss 3 or 4 a week.
saline makes her cough blood, so hardly ever; pulmazyme if she has bad cold or weezy.
i think most teens go through an ''i cant be *beep* faze' (lol) but hopefully she will step them up as she gets into older adult hood.
she is 19....life in the fast lane 8)
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Re: Missing Medication

Postby airulea » Mon Mar 26, 2012 10:31 pm

I'm on 7 nebulisers since I was discharged from hospital last week...
- Antibiotics (Colomycin alternating with Tobi) x 2 though for Tobi month have new podinhaler (woop woop!)
- 7% Saline in PariPep x 2 during physio
- Taurolin (for cepecia)... just started... anyone else on this?? How do you find it?
- Pulmozyme

I've always found compliance with Pulmozyme hard as physios kept changing my time... afternoon... then before bed. Now it's 2 hours away from Antibiotic and before bed so getting used to that. It's more about re-programming my brain to get used to new schedule.

For compliance for everything else, I'm going to find it quite hard as 7 nebulisers & physio take up a lot of time esp when working etc. Going to do my best though to keep out of hospital! So far so good (one week in!)
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Re: Missing Medication

Postby pinkfink9 » Fri Apr 27, 2012 10:21 pm

7 nebs??? i would be demented getting my teen to comply with soooo much. how are you managing? do you find pulmazyme makes you cough? when do you think is best to do it if only on it once a day? :P
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Re: Missing Medication

Postby guest » Sun May 13, 2012 2:29 pm

I think the reason people miss medications is because life gets in the way.
Too busy doing other things.
When you've spent your entire life taking tablets and doing nebs and physio, it becomes a bit of a blur.
Sometimes, I can't remember if I've actually taken some tablets 5 minutes ago.
As we all know, we soon figure out missing the enzymes is a no-no.
Pain and cramps etc focuses the mind.
Doing physio, easy to skip when you're well, unthinkable when you're sick.
You have to laugh at doctors asking are you doing physio twice a day, when to miss a session, feels like drowning in phlegm.
Not to mention, you have no chance going to sleep from the coughing.
Also, missing nebulisers becomes a lot easier when you can see the *beep* thing having no effect.
5 minutes salbutamol, 10 minutes hypertonic and 20+ minutes on Tobi.
All before school or work. Its not happening. Reality kicks in. You take the one that makes you feel better.
I bet with these new podhalers, the levels of inhaled treatment compliance will skyrocket.
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