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2018 Annual Conference Presentations
Monday, 16 April 2018
  CFI Annual Conference 2018  The 2018 Cystic Fibrosis Ireland AGM & Annual Conference took  place in The Crowne Plaza Hotel, Dundalk on the weekend of April 6th - 8th. The title of the conference was ‘Independent Living’ and covered a range of topics including Education, Housing and Fertility. The conference also featured updates from medical...
Cystic Fibrosis Ireland-funded research to study the effect of exercise in the management of patients with cystic fibrosis undergoing lung transplantation Patient-centered research will examine the role of exercise in the management of patients with mild, moderate and severe cystic fibrosis With 65 Roses Day upon us, Cystic Fibrosis Ireland today...
CFI Conference 2018 Live Streaming
Thursday, 05 April 2018
CFI Conference 2018 Live Streaming The 2018 CFI Annual Conference and AGM will take place in the Crowne Plaza Hotel, Dundalk on April 6th - 8th. Live streaming from the CFI Conference 2018 will take place on Saturday April 7th at the following times: Morning Sessions from 9.00am to 11.00am Midday Sessions from 11.20am to 1.00pm Afternoon Sessions...
CFI Launch Independent Living Report
Tuesday, 03 April 2018
Report Shows Major Improvements in the Lives of  People with Cystic Fibrosis over 20 Years – But Much More to Do Date of issue: Wednesday, April 4 2018 A new and ground-breaking report on ‘Independent Living’from Cystic Fibrosis Ireland (CFI) highlights major improvements in the quality and the length of lives of people with cystic fibrosis (CF)...
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As expected, both Orkambi and Kalydeco (for the treatment of children with CF aged 2 years and older) will be subject to a full review by the National Centre for Pharma Economics (NCPE) in Ireland. This is normal for such drugs. This process includes a Health Technology Assessment (HTA) that may take up to 90 working days. We will let you know the outcome of these two reviews as soon as we hear.

We thank  everyone who responded to our recent survey – we received almost 500 responses which is an indication in itself how important this issue is  to our members. CFI is currently finalising our report which will include information drawn from this survey.

In the meantime, Minister for Health, Leo Varadkar TD has agreed to meet with Cystic Fibrosis Ireland following our request for a meeting before Christmas. This will take place before the end of January. CFI welcomes this opportunity to discuss with the Minister issues such as access to new and innovative therapies as well as other key CF related issues including staffing levels in hospitals and investment in key CF centres.

Many thanks to all our members for their support to date.

Philip Watt

CEO Cystic Fibrosis Ireland

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