Spectrum - Summer 2019

Spectrum - Summer 2019

It has been a busy few months for the CF Community beginning in March with the Annual Conference, we then had 65 Roses Day in April. The Malin 2 Mizen Cycle, the 2nd annual CF Art Exhibition in Limerick and the launch of the Helium Arts Project in Waterford all took place in May and in June we had the One in 1,000 campaign, the European CF Conference in Liverpool and the launch of "Our Baby has Sixty-Five Roses."

According to the 2018 CFRI Annual Report, over 90% of people with CF in Ireland experience gastrointestinal issues. In this spotlight two members of the CF Community share their experiences.

Our Baby has Sixty-Five Roses is the title of a new book by two Kildare mothers, Eilís Moroney and Ruth Cahill to help explain CF to other children in an age appropriate way. The book is available to buy from cfireland.ie

The big news from this year's European conference was the very promising forthcoming Vertex triple combination drug therapy.  Read more on the ECFS Conference and the CFI Annual Conference.

Catch up with all the campaigns that have taken place including One in 1,000 and the Malin 2 Mizen Cycle. Save the dates for upcoming fundraising campaigns such as Head 2 Head and Christmas Jumper Day!


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