How does Cystic Fibrosis Ireland advocate for its members?
Advocacy can be a way of levelling the playing field and helping to ensure that people with Cystic Fibrosis can claim their entitlements, get to access to the appropriate services and have their voices heard.
Many people with disabilities, including those with CF are well equipped to make their own decisions, given the requisite information and advice. However, a proportion of people with disabilities are at a disadvantage when claiming their entitlements or making important decisions, sometimes because of their vulnerability, sometimes because of the complexity of their needs or the formality of the process. Advocacy can provide these people with the support necessary to make their own decisions and choices or deal with official processes.
At Cystic Fibrosis Ireland, two people with CF work as advocates for the association, who can support members with queries or advice in relation to the above. You can find out how to contact the advocates here: CF Advocate Service.
To read more about how Cystic Fibrosis Ireland is actively involved in advocacy work on behalf of people with Cystic Fibrosis and their families go to the latest Advocacy News section.