Advocacy News Feed

Medical ID Cards

Medical ID Cards are available from CFI. Simply download the application form here or call the office to request one, return it, and we will get the card back to you within 2 weeks. You may find one useful in the following situations:

  • Travel Abroad
  • Backpacking for extended periods
  • In emergencies
  • To have parent contact details available
  • When needing disability access


Please contact Sam @ 1890 311211 or This email address is being protected from spambots. You need JavaScript enabled to view it.



Medical Card Review Process – Recent Announcement


CF Ireland made a submission in June 2014 to advocate for medical card eligibility on the basis of medical need, and for people with CF to be included in this cohort based on their lifelong progressive illness. Further to this submission, we were invited to attend focus groups with other patient organisations and provide more input on the issue.

At the end of November, Minister for Health Leo Varadkar and Minister for Primary and Social Care Kathleen Lynch announced the following changes to improve the operation of the medical card system, particularly for people with significant medical needs. The ten point actions include:

  • An enhanced assessment process which takes into account the burden of an illness or a condition
  • The greater exchange of information between the medical card central assessment office and the local health offices
  • People with a serious illness who hold a discretionary card can also be reassured that they will retain their card pending implementation of the actions to improve the operation of the scheme
  • The power of GPs to extend medical cards in difficult circumstances will be strengthened
  • A clinical advisory group is being established by the HSE to develop guidance on assessing applications involving significant medical conditions
  • The default position for medical cards given to people with terminal illnesses is that they will no longer be reviewed
  • The HSE will be empowered to provide people with therapies or appliances if that's what they need, even in the absence of a medical card
  • The HSE will develop a single, integrated process for people to apply for a medical card, a GP visit card, the Long-Term Illness scheme, and the Drugs Payment Scheme
  • Access points will be established around the country in health offices to support and assist people to make applications
  • The Department and the HSE will consider the best way to make medical aids and appliances available to persons who do not hold a medical card, the provision of services to children with severe disabilities, and to enable people with particular needs to have these met on an individual basis rather than awarding a medical card to all family members

"From now on, wider discretion and greater humanity will be exercised as part of an enhanced process that takes into account the burden of an illness or condition," Mr Varadkar said.

CFI will be keeping a close eye on the implementation of this ten point plan, and will keep members updated on all subsequent developments in the area.

For more information:



Long-Term Illness Book Update


CFI made a submission on 'CF and the Long-Term Illness scheme' in April 2014. The purpose of this submission was to highlight the difficulties some members were experiencing in accessing certain items and medications through the LTI scheme. Clarification from the HSE on what drugs are currently available to PWCF through the LTI scheme was sought to reduce confusion amongst both community pharmacists and PWCF.

From June 2014, an updated Core List was published by the HSE that lists all the medications automatically approved for all new people with CF. We are happy to reveal that many of the items listed in our submission are now included on this list.

For people joining the LTI Scheme from September 2014, medicines on this Core List are now automatically approved for people with CF. It is hoped that this Core List will make it much clearer for people with CF and health professionals on what types of medicines are included in the LTI scheme, and will reduce the amount of administration for patients and healthcare professionals in adding medication to a patients LTI book.

Where a PWCF is prescribed an item on the Core List for CF, it will no longer be necessary to get approval on each occasion that a medicine is changed.

My GP has prescribed a new medication and my pharmacist informs me that it is on the Core List. Do I need to send my LTI Book to the local office for updating?
No. It is not necessary for you or your GP to send in your LTI Book for updating where the medicine prescribed for you is on the Core List for your LTI condition.

I have a medical card and I have a LTI book. I can't / My pharmacist won't give me all my medicines on my LTI book.
Your pharmacist is aware that not all of your medicines are available to you under the LTI scheme. The HSE is satisfied that all medicines that should be necessary for the treatment of your primary LTI condition are provided on the Core List. Those that are not on the Core List can be provided to you under the Medical Card scheme for which you will have to pay a prescription charge.

How can I register an appeal with the HSE to have a medicine approved that is not listed on the Core List of the LTI?
If the medicine has been prescribed or recommended by a hospital, you can register an appeal with your HSE Local Health Office to get the item added to your LTI book. You may be asked to get your hospital clinician to complete an individual reimbursement form.

You can access the full core list of medications for PWCF through the LTI scheme here.