CFI Submission on Water Charges
CFI recently (August 2014) made a submission to the Commission on Energy Regulation on the Economic Regulation of the Public Water Service Sector. The purpose of the submission was to highlight the additional strain which will be placed on people with Cystic Fibrosis (PWCF) and the households in which they reside when the impending water charges are introduced next year.
This submission is based on the concerns of our members, highlighting the additional water needs of this patient population and also the need to ensure the provision and affordability of basic services to the most vulnerable populations in society.
Summary of key points in the submission
- Water is a basic human right and therefore mechanisms ensuring affordability and access for Ireland's vulnerable households, including those with a medical condition, must be established and implemented before charges are introduced. This can be achieved through the allocation of free water allowances and medical allowances.
- A large proportion of PWCF are now managing their illness in their home. This requires a rigorous daily routine of treatments, such as taking numerous nebulisers, airway clearance (including exercise) and often over 30 tablets per day. The need for water for equipment cleaning, adopting correct hygiene procedures, personal hygiene after exercise and large volumes of drinking water are essential to the management of this illness.
- The majority of PWCF are pancreatic insufficient, which is generally managed through pancreatic enzyme replacement therapy. However, this complication often causes an increased volume of protein and fat in the bowls, resulting in diarrheal symptoms and increased use of the toilet.
- Cystic fibrosis can cause a person to become easily dehydrated or to have very low salt levels. This makes it very important for people with cystic fibrosis to drink high volumes of water on a daily basis.
- Households with a medical condition, such as Cystic Fibrosis, are identifiable through medically assessed payments, such as the Long-Term Illness scheme & the medical card scheme or through social supports, such as domiciliary care allowance, carers allowance, disability allowances, etc
To read the full submission, please go to www.cfireland.ie
Update 29th Sept 2014
Charges will be capped at the assessed rate for people whose medical condition requires extra water usage. Customers can request this facility from Irish Water but a list of specific medical conditions has not been drafted.
Read more about the process involved here:
We will keep members updated with any further developments on the issue.