Advocacy can be a way of levelling the playing field and helping to ensure that people with Cystic Fibrosis can claim their entitlements, get to access to the appropriate services and have their voices heard.
Many people with disabilities, including those with CF are well equipped to make their own decisions, given the requisite information and advice. However, a proportion of people with disabilities are at a disadvantage when claiming their entitlements or making important decisions, sometimes because of their vulnerability, sometimes because of the complexity of their needs or the formality of the process. Advocacy can provide these people with the support necessary to make their own decisions and choices or deal with official processes.
Cystic Fibrosis Ireland have a dedicated Member Services Team, which includes two CF Advocates. The team which is led by Senior Coordinator, Samantha Byrne support members with queries and provide information on advice on a variety of areas.
Further details on the CF Advocates can be found in the information sheet below.
Member Services Team Contact Information
Samantha Byrne Caroline Heffernan Rory Tallon
Member Services Senior Co-ordinator CF Advocate CF Advocate
01 496 2433 087 932 3933 087 932 3930
sbyrne@cfireland.ie cheffernan@cfireland.ie rtallon@cfireland.ie