Statement by Cystic Fibrosis Ireland on Fundraising

Statement by Cystic Fibrosis Ireland on Fundraising

 

In the wake of the recent controversy in relation to the Central Remedial Clinic we would like to assure the members, friends and supporters of Cystic Fibrosis Ireland (CFI) of the following:

1. No staff in CFI, including the CEO, receives 'top ups' in their wages from charitable or any other sources.
2. Cystic Fibrosis Ireland receives almost all its funding from voluntary/community fundraising- we receive only a very small proportion of our income from government sources.
3. We fully subscribe to the fundraising guidelines of the ICTR, which is recognised as the standard for Irish charities http://www.ictr.ie/content/organisations-signed-statement-guiding-principles-fundraising
4. We have fully audited accounts that are available on our website. The Finance Committee and ultimately the Board of the CFI, mainly comprised of parents and people with CF from our branches, make all the major financial decisions relating to our work.
5. CFI was awarded the prestigious CMG 'outstanding contribution to health care' award for 2013. The 'Irish Independent' recently published a special feature highlighting the positive work of CFI. A recent survey showed that our members greatly value our work.
6. Our magazine Spectrum regularly updates our members on where our fundraising is spent, including major funding for CF units in for example; Crumlin, Drogheda, Castlebar, Cavan, Waterford, and MWRH Limerick hospitals (€2.1m spent in 2012). Also CFI provides:
o Grants to our members for transplant, physiotherapy, fertility and exercise
o Grants for vital CF equipment
o Grants for research including in Cork University Hospital
o Advice and support for our members
o Advocacy for new therapies (including Kalydeco), in-patient facilities St Vincent's Hospital, Beaumont Hospital (for example) and improving the donor and transplant rates in Ireland
We assure our members that CFI strives for the highest possible standards in our fundraising and in all our work. We would call on the Government to implement the Charities Act 2009 without further delay to ensure that all charities in Ireland are transparent and accountable for their work. We thank our members, friends and supporters for their incredible help in 2013 and we look forward to working together to continue to improve CF services in 2014.

WE NEED YOUR SUPPORT

Philip Watt
Chief Executive Officer