This booklet is intended as a guide for parents whose child or children have been recently diagnosed with cystic fibrosis (CF). It contains information about CF and coming to terms with a new diagnosis. It also includes information on how CF affects the body and what treatments are available, and provides answers to some questions other parents have asked.
People with cystic fibrosis are vulnerable to microbes that can cause serious infections. These infections are often difficult to treat with antibiotics so it is important to keep these 'microbes' from spreading.
This information sheet outlines some of the most common respiratory microbes in people with CF.
Good nutrition plays an important role in your child's overall wellbeing. This information sheet will explain your child's special nutritional requirements and what is needed to ensure your baby grows well and gains weight.
Cystic Fibrosis Care is an information sheet for new parents to help explain what care a child with Cystic Fibrosis will receive. It is one of a series of information sheets that forms part of the new parent pack.
The roles of the individual Cystic Fibrosis team members are outlined and an overview of Cystic Fibrosis care centres is provided, along with what you should expect to happen at clinic appointments and annual assessments.