The Summer 2018 issue of Spectrum is jam packed with information.
CFI CEO, Philip Watt responds to a recent article by Dr Aileen Murphy, who claimed among other views, that ‘it is little consolation to those who need treatment now and to those whose access
to other healthcare has been delayed owing to the opportunity costs of funding Orkambi’.
Does CF impact travel?
We talk to two people with first hand experience; Declan Houlihan, PWCF has visited 86 countries and shares his top tips. Claire Merrigan shares her experiences of travelling with a child with CF and her advice.
Do you know the benefits exercise can have for a PWCF?
Read about the exciting research into the effects of exercise in the management of CF patients undergoing lung transplantation.
We also have details on upcoming fundraising campaigns, a gallery of photos from the recent CF Art Exhibition in Limerick and introduce you to the newest member of the CFI staff team, Brendán.