Latest News

Progress on Potential new CF drug
Wednesday, 13 May 2015
article thumbnailProgress on Potential new CF drug The Food and Drug Administration in the United States (FDA) advisory committee, made up of independent medical experts and community representatives, voted 12 to 1 to recommend that the FDA approve the ivacaftor/lumacaftor combination therapy (Orkambi).  While the committee’s recommendation is an important part of the...
article thumbnailLiving with Cystic Fibrosis / Exercise Part 2 of the ‘Living with CF’ video series launches today and focuses on the benefits of Exercise for people with CF. Watch this inspirational video to see how Lar Brennan from Wexford, Sasha Delaney from Dublin, Neil McCarthy from Donegal, and Grace Duffy from Dubin use different forms of exercise to keep...
Catch up on the Conference!
Monday, 20 April 2015
article thumbnailCatch up on the Conference! Did you miss our Annual Conference in Limerick on Saturday 11th April? Fear not, this is your chance to catch up on all that you missed! All the main speakers and presentations are now available for you to watch. Link to CFI Annual Conference 2015. If you have any feedback on this year's conference, or would like to see...
article thumbnailInformation Video for New Parents Launches An information video has been produced as part of the 'Living with Cystic Fibrosis' series and is intended to provide support to New Parents following the diagnosis of their child with CF. Launched at the Cystic Fibrossi Ireland Annual Conference on Satirday 11th April, the video features parents...
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