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article thumbnail  Progress in US on new CF Drug and on gene therapy trials in the UK ORKAMBI approved in the United States The first drug to treat the underlying cause with people with Cystic Fibrosis with the most common CF gene alteration in the world f508del has been approved in the United States by the Food and Drug Administration (FDA). The drug is called...
article thumbnailCystic Fibrosis Ireland have been very active in highlighting the injustice of the 23% VAT on building projects. We raised the VAT issue directly with the Minister for Finance, Michael Noonan when we met him in Limerick in January of this year. In April, CFI also briefed 53 TDs who met us in Buswell's hotel for a photo-shoot to launch 65 Roses...
Progress on Potential new CF drug
Wednesday, 13 May 2015
article thumbnailProgress on Potential new CF drug The Food and Drug Administration in the United States (FDA) advisory committee, made up of independent medical experts and community representatives, voted 12 to 1 to recommend that the FDA approve the ivacaftor/lumacaftor combination therapy (Orkambi).  While the committee’s recommendation is an important part of the...
article thumbnailLiving with Cystic Fibrosis / Exercise Part 2 of the ‘Living with CF’ video series launches today and focuses on the benefits of Exercise for people with CF. Watch this inspirational video to see how Lar Brennan from Wexford, Sasha Delaney from Dublin, Neil McCarthy from Donegal, and Grace Duffy from Dubin use different forms of exercise to keep...
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