Latest News

Good News on Fertility Treatment
Tuesday, 02 February 2016
article thumbnailMessage from Philip Watt, CEO Cystic Fibrosis "I am pleased to let you know that the Minister for Health has announced his intention (see press release below) to publically fund fertility treatment (in conjunction with planned legislation). This is something that CFI has fought for some time. We will of course be working to ensure that people...
article thumbnailCystic Fibrosis Ireland have put together a list of priorities for the upcoming General Election. These are available in two documents. The first document "Make Cystic Fibrosis a Priority in General Election 2016" highlights the talking points to bring up with election canditates. The second document goes into these points in more detail and gives...
CFI meet with Minister for Health
Wednesday, 27 January 2016
article thumbnailCystic Fibrosis Ireland met with Minister for Health Leo Varadkar and senior officials for the Department of Health on Monday 25th January 2016.  A delegation from Cystic Fibrosis Ireland and a member of our Medical and Scientific Council (clinician) and a patient with CF met with Minister Leo Varadkar on Monday 25th January 2016. The meeting was...
article thumbnailNew €1.4m Cystic Fibrosis day care centre in Mayo University Hospital is officially opened by An Taoiseach Enda Kenny TD A new €1.4m day care centre for patients with Cystic Fibrosis (CF) was officially opened by An Taoiseach, Enda Kenny TD, today, Friday 15th January at Mayo University Hospital. The new centre will, for the first time, provide...
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As expected, both Orkambi and Kalydeco (for the treatment of children with CF aged 2 years and older) will be subject to a full review by the National Centre for Pharma Economics (NCPE) in Ireland. This is normal for such drugs. This process includes a Health Technology Assessment (HTA) that may take up to 90 working days. We will let you know the outcome of these two reviews as soon as we hear.

We thank  everyone who responded to our recent survey – we received almost 500 responses which is an indication in itself how important this issue is  to our members. CFI is currently finalising our report which will include information drawn from this survey.

In the meantime, Minister for Health, Leo Varadkar TD has agreed to meet with Cystic Fibrosis Ireland following our request for a meeting before Christmas. This will take place before the end of January. CFI welcomes this opportunity to discuss with the Minister issues such as access to new and innovative therapies as well as other key CF related issues including staffing levels in hospitals and investment in key CF centres.

Many thanks to all our members for their support to date.

Philip Watt

CEO Cystic Fibrosis Ireland