The 2019 Summer edition of Spectrum is a bumper edition which features reports from the CFI Annual Conference which took place in the Mount Wolseley Hotel, Carlow in March and the European CF Conference which took place in Liverpool in June. There have been a number of positive developments with the hospitals and we continue to advocate for our members both here and abroad on improving CF services and care. Philip Watt discusses this, our work with other patient groups to improve services and much more in his CEO Report.
The Spring 2019 edition of Spectrum highlights the hobbies and interest of some of our members including PWCF, siblings and parents.
Philip Watt gives an update on access to Orkambi and Symkevi both here and abroad and the latest developments on CF research.
Our cover stars for this edition are Alfie Dardis and his best friend Ava Casserly, thanks to them the launch of 65 Roses Day was a very colourful affair.
The Winter Edition of Spectrum includes an update from Philip Watt, CEO on the approval of Symkevi, the announcement by Minister for Health Simon Harris that Soft Opt-Out Organ donation consent will be brought before the Cabinet for approval and the promise from an Taoiseach, Leo Varadkar to introduce a scheme supporting parents who need IVF to start a family.
In Spotlight, we focus on exercise.Exercise is a vital part of treatment for cystic fibrosis, helping to clear the airways and maintain good lung function. However, for some members of the CF Community exercise isn’t treatment, it is their enjoyment.
This issue also features updates from Member Services, Research and Fundraising.
In the Autumn 2018 Edition of Spectrum, CEO Philip Watt discusses new Organ Donor legislation.
Education is the subject of our Spotlight, as members of the CF Community share how CF has impacted their lives.
Dr. Des Cox shares information on the "My CF Story" App.
The research team update us on the latest projects.
Catch up on recent fundraising activities and find out more about upcoming campaigns.