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The HSE has provided the following information about changes in Oral Nutritional Supplements (ONS) policy. CFI would welcome feedback on these how these changes affect our members.



HSE Advice on ONS Policy changes 



'From 1st July 2019, there are changes to the way that some standard Oral Nutritional Supplements (ONS) are reimbursed under GMS and Community Drug Schemes. 


Standard ONS products have been divided into first line List A products (comparable, in some cases clinically superior, and more cost effective) than List B products. If List A products are prescribed, there is no change to current reimbursement arrangements at all – if the patient has been historically approved outside of Core List L. From 1st  July 2019, if a patient is prescribed a standard ONS on List B, the patient’s  GP, HSE dietitian or clinician must apply online for continued reimbursement approval of this product under their LTI eligibility. List A and B are attached for your information (see below).


Reimbursement approval for ONS on List B is based on whether the patient has a clinical (medical) requirement for that specific product rather than an alternative comparable product.


Where the patient is subsequently approved for an ONS on List B, the pharmacy can continue to dispense this product under the patient’s LTI eligibility. This ONS will be reimbursed for a period of up to six months from the date of approval. The maximum validity for any prescription is six months.


If an ONS on List B is not approved, and it is unlikely that would be the case if the applicant outlines a CF diagnosis, the doctor or dietitian can recommend an ONS from List A or they may appeal the reimbursement decision.  


A patient information leaflet has been developed to assist with these changes. I have attached this leaflet for your information. Further information can also be found on the HSE website (nutrition supports) at and the HSE  Medicines Management Programme webpage at







Cystic Fibrosis Ireland Invite Expressions of Interest in the post of Regional Development Officer Based in Limerick city

Cystic Fibrosis Ireland are currently sourcing an expression of interest for the Regional Development Officer vacant position based in our Limerick office.

The role of the Regional Development Officer is both varied and rewarding and is at a time of significant progress in CF care in Ireland and includes:

  • Support for the improvement of services for people with CF in the greater Limerick area
  • Support for the preparation of high level meetings with UHL
  • Support for the preparation of meetings of the CFI Regional branch (TLC4CF)
  • Provision of information and related supports for people with CF from the regional office with support from the national office in Dublin
  • Strategic support for fundraising initiatives linked to CF projects in the Mid-West Region

Please click here to view a full job description of the post within CFI.

The position will be available to apply for by application in late August / early September.


CFI Statement on The Hyde Family

Cystic Fibrosis Ireland are delighted that the Hyde Family, an Irish family facing deportation because of the cost of treating their son's CF, have been granted residency in Australia.

Speaking on the announcement, Philip Watt, Chief Executive, Cystic Fibrosis Ireland said;

“We are delighted to hear the Hyde Family have been granted residency. We would like to thank the Australian Ambassador to Ireland who kindly forwarded the concerns of CFI to the Australian Government.”

“We would also like to thank Cystic Fibrosis Australia, in particular their CEO, Nettie Burke for her kind support on this issue. Finally a huge thanks to the 120,000 people who supported the Hyde family and signed a petition calling for the family to be allowed remain in Australia. Your support made a difference.”

Christine and Anthony Hyde have lived in Australia since 2009. Their son Darragh was born in Australia in 2015. Shortly after his birth, Darragh was diagnosed with cystic fibrosis.

The Hyde’s application for residency had previously been rejected on the basis of Darragh’s condition and perceived future health and financial burden on the State.

Cystic Fibrosis Ireland had been in touch with the Hyde family to offer them support during this extremely difficult time and will continue to support the family as needed.

In a blog post last night, Ms Hyde stated

"Thank you to everyone who supported us.  Late yesterday evening we received the good news that we were granted residency. We are so excited, a huge weight has been lifted and we can continue our lives. We are completely grateful to everyone!!"