Cystic Fibrosis Ireland welcomes IVF support

Cystic Fibrosis Ireland welcomes IVF support but seek more information on what will be provided

Cystic Fibrosis Ireland broadly welcomes the intention by Government to subsidise IVF treatment for couples unable to conceive from 2019 onwards.

This is a key issue for people with CF who often need fertility treatment in order to start their own families - infertility is a lesser known symptom of CF for both males and females, though it affects some people more than others.

Ireland is one of the few countries in Europe where people with CF do not have access to subsidised or fully supported IVF treatment.

CFI would like to see further detail on this proposal and asks:

What will be the level of subsidy?

Who will be entitled to the subsidy?

Will the subsidy cover more than one cycle of IVF treatment? (€6,000 is the usual price of 1 IVF cycle)

Will PGD be covered by the scheme?

Preimplantation genetic diagnosis (PGD) is a procedure used prior to implantation in conjunction with IVF to help identify genetic defects within embryos. This serves to prevent certain genetic diseases or disorders from being passed on to the child. Many couples with 1 child with CF opt for PGD to ensure that further children are not born with CF. There are 2 clinics that provide PGD treatment in Ireland. It can cost upwards of €11,650 for a combined PGD and IVF treatment. It is completely unacceptable that people with CF have to pay for IVF and for parents with a CF child to pay upwards of €11,650 in total for PGD.  

CFI is currently finalising a submission to government on this issue

Philip Watt