Model of Care for Cystic Fibrosis in Ireland

 

Model of Care for Cystic Fibrosis in Ireland

The first Model of Care for Cystic Fibrosis in Ireland, developed by the National Clinical Programme for Cystic Fibrosis, outlines how the care of people with Cystic Fibrosis should be organised and resourced now and in the future.

This Model of Care was written by the Working Group of the National Clinical Programme for Cystic Fibrosis (NCPCF). It outlines how the care of people with Cystic Fibrosis should be organised and resourced now and in the future.

The model of care was launched today, 30 September 2019 at RCPI.

The Model of Care was written by the National Clinical Programme for Cystic Fibrosis, which includes nominees from different groups involved in the health of People with Cystic Fibrosis. It includes nominees from the Cystic Fibrosis Centres and Shared Care Centres throughout Ireland, Cystic Fibrosis Team Members, Cystic Fibrosis Ireland, Cystic Fibrosis Registry of Ireland, HSE Acute Hospitals Division and others.

The frequency, severity and complexity of Cystic Fibrosis are greater in Ireland than in most countries. For this reason this Model of Care for Cystic Fibrosis has been specifically developed for the Irish population.

Click on the button below to download the Model of Care for Cystic Fibrosis in Ireland

 

One of the key recommendations of the Model is that People with Cystic Fibrosis must be cared for in a small number of Designated Cystic Fibrosis Centres that are properly staffed and resourced.

The National Clinical Programme for Cystic Fibrosis is calling for a National Cystic Fibrosis Office to be established to coordinate, manage and integrate all aspects of CF care in order to optimise the health and quality of life of People with Cystic Fibrosis in Ireland.

Professor Charles Gallagher, National Clinical Lead, National Clinical Programme for Cystic Fibrosis, said,

"This Model of Care is dedicated to people with Cystic Fibrosis, and their families, who bravely deal with Cystic Fibrosis every day of their lives. It is also dedicated to the people with Cystic Fibrosis who are no longer with us and their families; you will not be forgotten."

Speaking at the launch today, Philip Watt, Chief Executive, Cystic Fibrosis Ireland said,

"Cystic Fibrosis Ireland fully support the CF Model of Care, which builds on the Pollock Report of 2005. Cystic Fibrosis Ireland call on the HSE to provide the resources to fully implement the Model of Care."

Minister for Health Simon Harris TD, speaking at launch today, stated:

"This is truly a national model for People with Cystic Fibrosis throughout Ireland.  The Model is focussed not only on today, but on the future. At the centre of this model of care is the health and wellbeing of people with cystic fibrosis and this must continue to be our priority.

"As Minister, I want to assure you I will do everything I can to limit the impact of this disease, enhance the quality of patients’ lives and support scientific endeavours in the search for a cure."

 

About the National Clinical Programme for Cystic Fibrosis (NCPCF)

The National Clinical Programme for Cystic Fibrosis (NCPCF) will plan and direct the delivery of care to people with Cystic Fibrosis. The Clinical Lead is Professor Charles Gallagher. The Programme Manager is Gary Killeen, who is based in RCPI.

The membership of the NCPCF Working Group is multidisciplinary, including nominees from different groups involved in the care of people with Cystic Fibrosis, including nominees from the Cystic Fibrosis Centres and Shared Care Centres, Cystic Fibrosis Team Members, Cystic Fibrosis Ireland, Cystic Fibrosis Registry of Ireland, HSE Acute Hospitals Division and others.