Statement from CF Ireland regarding the retention of National New Born Screening Cards
In response to interest and requests from a number of groups and individuals, we are publishing the recent submission from Cystic Fibrosis Ireland (CFI) to the Department of Health and the RCPI in relation to the retention and linked possible broadened use of National New Born Screening Cards.
The approach of CFI on this issue is to be constructive and forward looking, while seeking to preserve the integrity of the Screening Programme itself.
The submission includes a summary of why the the screening process is so important for CF paediatric care.
We very much welcome comments and observations.
Philip Watt, CEO CF Ireland
Added June 2013