CFRI Annual Report 2016

CFRI Annual Report 2016

The Cystic Fibrosis Registry of Ireland (CFRI) was established to advance education by collecting and analysing information relating to cystic fibrosis which can be used to facilitate research and provide accurate reports in order to monitor and improve treatments which will contribute to the quality of care of persons with cystic fibrosis.

The subsidiary objects of the CFRI are divided into four key areas:

1: Registry Process

2. Research

3. Planning & Management

4. Reporting

The CFRI Annual Report will cover the incidence, prevalence and treatment of patients registered, at a sufficient level of morbidity and geographical detail to make it useful for planning and delivering services to people with CF.