Caoimhín O'Lúing, Parent, Siobhan Murray, PWCF, Laura Carrick, PWCF, Sarah Pender, PWCF
The recent Independent Living Report produced by Cystic Fibrosis Ireland highlighted that education is still an area where people with cystic fibrosis (PWCF) face enormous challenges due to their chronic illness. The report showed that there has been a significant increase in PWCF obtaining third level qualifications. However, cystic fibrosis continues to cause significant periods of absenteeism from school or college which causes an associated impact on the ability to perform.
In this Spotlight we hear from four members of the CF Community at different stages of education who tell us the impact CF has on their education and how they manage study and treatment.
Declan Houlihan, PWCF and Claire Merrigan, Mother of a child with CF
As every person with CF knows cross infection is a huge risk and can inhibit personal interaction with fellow members of the CF Community. Peer support is as important to self management of a condition as any other aspect of care.To this length a group of CF’ers came together to start a an online group for people with CF to act as an outlet, a support and a meeting point for the community. While we recognise the CF Community is made up of non-PWCFs (parents, siblings, partners, children) it wasimportant for patients to have a place where they could speak openly.
The CF Mammies Facebook page was born at a CF conference in Kilashee castle, Kildare in 2012 where four Mums met each other for the first time. We sat and spoke about all our experiences with our children (some more experienced than others in the CF journey) but brought great comfort to know wewere not alone. When it was time to leave on the Sunday afternoon we decided to set up a Facebook group with each other that we could continue to chat and offer advice & support when needed.
Sadie Kerrigan, CF Mammy
The biggest snow fall since 1982, the Beast from the East!
Read one mother's experience of braving the storm with a child in hospital.
Bernie Martin, CF Mammy
As parents, we automatically think of ourselves as our children's educators. But if we allow them to, our children can actually teach US so much.
Read one mother's journey of learning as she explains how having a child with CF can change your life completely.
Aoife Rafter, PWCF
Sharing her experiences of battling CF Aoife talks about education, travel, employment and other aspects of her life and the path that took her to climbing Croagh Patrick!
Click here to read Aoife's inspirational story of #BeatingCF
Sara has cystic fibrosis, but it is not the most important thing about her. She is a daughter, a wife, a sister and a mother. In her own words "These are the things that are a part of who I am because these are the things that have showed me the path I should follow."
Follow Sara as she shares her story and the role arts and craft play in her life.
Brian McCarroll, PWCF
Reflect on this mammoth cycle with Brian as he talks cystic fibrosis, cycling and confidence.
By Ella Burns, PWCF
Taught to swim at an early age, to be water safe to training at 4.30am Ella shares how she made the move from swimming lessons to the Irish Open Long Course Championships and how she manages swimming and studying.
Click here to read Ella's story.