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Taged in Spectrum

Spectrum - Winter 2018

The Winter Edition of Spectrum includes an update from Philip Watt, CEO on the approval of Symkevi, the announcement by Minister for Health Simon Harris that Soft Opt-Out Organ donation consent will be brought before the Cabinet for approval and the promise from an Taoiseach, Leo Varadkar to introduce a scheme supporting parents who need IVF to start a family.

In Spotlight, we focus on exercise.Exercise is a vital part of treatment for cystic fibrosis, helping to clear the airways and maintain good lung function. However, for some members of the CF Community exercise isn’t treatment, it is their enjoyment.

This issue also features updates from Member Services, Research and Fundraising.

Spectrum - Autumn 2018

In the Autumn 2018 Edition of Spectrum, CEO Philip Watt discusses new Organ Donor legislation.

Education is the subject of our Spotlight, as members of the CF Community share how CF has impacted their lives. 

Dr. Des Cox shares information on the "My CF Story" App.

The research team update us on the latest projects. 

Catch up on recent fundraising activities and find out more about upcoming campaigns.

Spectrum - Summer 2018

In the Summer 2018 Edition of Spectrum, CEO Philip Watt CEO Philip Watt responds to an article on access to medication.

We get the top tips on travelling with CF from a PWCF and a parent of a child with CF.

The research team update us on the latest projects. 

Catch up on recent fundraising activities and find out more about upcoming campaigns.

View a gallery from the opening night of the CF Art Exhibition in Limerick

Spectrum - Winter 2017

CEO Philip Watt discusses the challenges that lie ahead for the CF Community while looking back at the major developments that took place in 2017.

Three members of the CF Community share their stories of life with CF.

Read this and much more in the 2017 Winter Edition of Spectrum.

 

Spectrum - Summer 2017

The 2017 Summer Edition of Spectrum includes a report from CFI Chairperson Patricia Duffy Barber on the ECFS Conference. 

PWCF Brian McCarroll shares his journey from Malin to Mizen and introducing the 2017 San Francisco Rose, Amanada Donohoe!

Spectrum - Winter 2016

The Winter 2016 edition of Spectrum is here. This edition outlines the latest on the negotiations for Orkambi and the extension of Kalydeco.

We have articles from Lee Harnett and Daniel Diskin and information on the 2017 Exercise Grant.

We also have a report on the opening of the new Units in University Hospital Limerick.

Spectrum – Autumn 2016

 

The Autumn 2016 issue of Spectrum is here!  This edition contains Hospital updates as well as the latest on Orkambi and
Kalydeco.

We have articles from Val Weblin, Luke Doherty and information about book your
room for our 2017 Annual Conference in Killarney.

We also have an articles on Charity of the Year and fundraising updates from
around the country.

 

Spectrum – Summer 2016

The Summer 2016 issue of Spectrum is here! 

We have a progress update on Orkambi and a review of ECFS 2016 by Christina Kenny. We also introduce Rory Tallon as the new CF Advocate and Patricia Duffy-Barber as the new Chairperson of the NEC. There are also lots of photos from this year's CFI Conference in Sligo.

Spectrum – Spring 2016

The Spring 2016 issue of Spectrum is here! 

We have Hospital Updates, information about the Independent Living Working Group and extracts from Martina Jennings speech at the opening of the new unit at Mayo General Hospital.

Spectrum – Winter 2015

The Winter issue of Spectrum is here! 

We have Hospital Updates, information about the approval process for Orkambi and a report from Louise Byrne who attended the North American CF Conference.

Spectrum Newsletter

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