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Taged in Spectrum

Spectrum – Autumn 2015

The Autumn issue of Spectrum is finally here! 

We have details on our upcoming Information Evenings, Spotlight articles from Julie Forster and Rick Kelly and a new feature 'Reeling in the Years'.

Spectrum – Summer 2015

The Summer issue of Spectrum is finally here! 

We have a round up of the Annual Conference and 1 in 1,000 Women's Mini Marathon.

Nancy O'Neill (PWCF) contributes to Spotlight and we hear from Christina Kenny on living with a parent with CF.
Lots more inside on building developments, research news, our annual conference and much more!

Spectrum – Spring 2015

The Spring issue of Spectrum is finally here! 

With the '65 Roses' National Awareness week just around the corner, there are lots of ideas inside on how you can get involved and support us.

Helen O'Sullivan (PWCF) contributes to Spotlight and we hear from Gemma Dardis in Mum's Corner who looks back on the last 2 and a half years since the diagnosis of her son Alfie.

Lots more inside on building developments, research news, our annual conference and much more!

Spectrum – Issue 42

'The Circle of Life is Complete and Life is Good' are the concluding words in the remarkable article by Helen Ryan-Lawless – read her inspiring story in this issue of Spectrum.

Surf enthusiast Neil McCarthy from Ballyshannon Co Donegal also inspires in Spotlight, and Ronan Whitmarsh gives a moving account about dealing with the diagnosis of his son Finn.

Click on the link for news on building developments, research updates and much more.

Seasonal best wishes and Merry Christmas from the staff and the Board of Cystic Fibrosis Ireland.

Spectrum – Issue 29

Government must honour promise on free GP care for those with long-term illness - Notwithstanding the recent row and resignation of the Minister of State at the Department of Health, the Government has promised to extend access to GP services without fees to persons with those illnesses are prescribed in the Long-Term Illness Scheme, which includes cystic fibrosis. When this promise was made they indicated that primary legislation would have to be brought in to effect this change.

The CFAI calls on the government to honour this commitment without further delay.

Spectrum – Issue 30

It's getting chilly outside with winter drawing closer by the day. In this issue of Spectrum we remind our readers to get the Flu vaccine, particularly if you have CF.

We also give an update on the National Children's Hospital, the Fertility and Exercise Grant Schemes, and hear from Declan Houlihan, PWCF, who writes about chasing continents with CF.

A huge thank you to Pat Divilly and Joe Brolly, CFI Ambassadors, who took took part in two significant fundraisers since the last issue – well done to all! We hope you enjoy reading this issue of Spectrum.

Spectrum – Issue 33

Since our last issue, we had one of our best and most well-attended national conferences/AGMs in April with over 220 participants. There was very positive feedback on the presentations and the workshops. We were very proud to present awards to Anne O'Dwyer, Bridie Maguire, Professor Muiris X FitzGerald, and with a special media award to Joe Duffy from RTƒ. The hotel, Killashee House Hotel, was a great hit with everyone – it was one of the best venues we have had for an annual conference.

Spectrum – Issue 35

Cystic Fibrosis Ireland (CFI) will be meeting with senior management in Cork University Hospital (CUH) and the HSE concerning specialised CF nurse cover in the paediatric unit of CUH.

The gap in nursing cover reveals a systemic problem that has been building in Cork and in many other CF specialist centres and which has been previously highlighted by CFI. Because of government health policy across the country, key healthcare staff on sick and maternity leave are not being replaced. When this policy combines with increasing patient numbers, as is the case in Cork, there is a real danger that there will be gaps in services at critical times.

Spectrum – Issue 36

The theme of this year's 65 Roses National Awareness Week and conference is 'Better Together'. It is only by working together that we can improve CF services in Ireland. In recent weeks CFI has met with the senior management teams in St Vincent's University Hospital and University Hospital Limerick (in partnership with TLC4CF). We have further forthcoming meetings with Waterford Regional Hospital and the Mater University Hospital on a wide range of CF-related issues. On 13th March a CFI delegation met with Minister James Reilly TD to highlight continuing challenges in CF facilities in Ireland, including in particular in Beaumont Hospital where 13 inpatient rooms are badly needed for adult patients with CF.

Spectrum – Issue 37

The theme of this year's 65 Roses National Awareness Week and conference is 'Better Together'. It is only by working together that we can improve CF services in Ireland. In recent weeks CFI has met with the senior management teams in St Vincent's University Hospital and University Hospital Limerick (in partnership with TLC4CF). We have further forthcoming meetings with Waterford Regional Hospital and the Mater University Hospital on a wide range of CF-related issues. On 13th March a CFI delegation met with Minister James Reilly TD to highlight continuing challenges in CF facilities in Ireland, including in particular in Beaumont Hospital where 13 inpatient rooms are badly needed for adult patients with CF.

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