Cystic Fibrosis Ireland (CFI) will be meeting with senior management in Cork University Hospital (CUH) and the HSE concerning specialised CF nurse cover in the paediatric unit of CUH.
The gap in nursing cover reveals a systemic problem that has been building in Cork and in many other CF specialist centres and which has been previously highlighted by CFI. Because of government health policy across the country, key healthcare staff on sick and maternity leave are not being replaced. When this policy combines with increasing patient numbers, as is the case in Cork, there is a real danger that there will be gaps in services at critical times.
It's great to see all the work continue around the country with good progress in the new build CF facilities in Drogheda and MWRH Limerick and work to commence in the next few months in Castlebar, Cavan, Waterford and Galway.
We will also be keeping up the pressure (and fundraising) for the CF 'Beds for Beaumont'. It's important to note the building progress in both the large specialised CF Centres and the smaller regional centres.
Since our last issue, we had one of our best and most well-attended national conferences/AGMs in April with over 220 participants. There was very positive feedback on the presentations and the workshops. We were very proud to present awards to Anne O'Dwyer, Bridie Maguire, Professor Muiris X FitzGerald, and with a special media award to Joe Duffy from RT. The hotel, Killashee House Hotel, was a great hit with everyone – it was one of the best venues we have had for an annual conference.
This edition of Spectrum highlights some of the events to mark our 50th anniversary. Many thanks again to all who participated in the remembrance and thanksgiving ceremony in the Mary Immaculate Church in Rathmines in February. Judging by the many cards that came into the office since, it is clear that the day meant a lot to the 500 people who attended.