This edition of Spectrum highlights some of the events to mark our 50th anniversary. Many thanks again to all who participated in the remembrance and thanksgiving ceremony in the Mary Immaculate Church in Rathmines in February. Judging by the many cards that came into the office since, it is clear that the day meant a lot to the 500 people who attended.
Happy birthday to Cystic Fibrosis Ireland (CFI), which is a youthful 50 years old and many thanks to all our branches, our members and supporters for their fantastic work since we were established in 1963. Along with the Irish Cancer Society and the Irish Autism Society we are the oldest patient advocacy group in Ireland and one of the first CF patient groups in Europe. A forthcoming book on the association will give a good insight into how CFI came to be formed and some of our impact over the past five decades. The work of our members and the dedicated doctors and their teams is a story worth telling.
It's getting chilly outside with winter drawing closer by the day. In this issue of Spectrum we remind our readers to get the Flu vaccine, particularly if you have CF.
We also give an update on the National Children's Hospital, the Fertility and Exercise Grant Schemes, and hear from Declan Houlihan, PWCF, who writes about chasing continents with CF.
A huge thank you to Pat Divilly and Joe Brolly, CFI Ambassadors, who took took part in two significant fundraisers since the last issue – well done to all! We hope you enjoy reading this issue of Spectrum.
Government must honour promise on free GP care for those with long-term illness - Notwithstanding the recent row and resignation of the Minister of State at the Department of Health, the Government has promised to extend access to GP services without fees to persons with those illnesses are prescribed in the Long-Term Illness Scheme, which includes cystic fibrosis. When this promise was made they indicated that primary legislation would have to be brought in to effect this change.
The CFAI calls on the government to honour this commitment without further delay.