CFRI would love to know what you want to know about their work? Do you want to know more about what registry data is used for? Or how data is collected? Or maybe you want to understand the positive impacts the registry has had for CF in Ireland?

CFRI are here to answer any questions you have – you can submit questions anonymously via this link. Alternatively send us a DM via CFI channels, and we will anonymously pass on questions you have. CFRI will answer questions via future Spectrum contributions and via their social media channels.

Please note, CFRI cannot address questions relating to individual participation in the registry or an individual’s data. PwCF/families with questions regarding their data/participation in the registry can contact their clinical teams or info@cfri.ie.