People with Cystic Fibrosis, their families and carers are being invited to take part in a research study to be carried out by Dr Tamara Vagg at the Cork Centre for Cystic Fibrosis (3CF).

This study is called the "CF Telehealth Toolbox" and is being done in collaboration with a PPI team of both PwCF and Parents of PwCF. There are lots of digital health/electronic tools available to people with CF, and the HSE are now expanding this list with their current HSE smartphone app, and in the future, electronic health record. This lead us to wonder, if the CF community are using any electronic tools currently to support their care, and if there are any skills/training they need to use these tools with confidence. 

Following this survey, we are hoping to develop a resource for the CF community to explore and develop these skills further.

The survey is short (8-10mins), anonymous, and open to any PwCF, their family and their caregivers.

Take part by clicking here: https://ucc.qualtrics.com/jfe/form/SV_9vt7u31aKaz8f4i