CFI are currently looking for CF Ambassadors and representatives from the CF Community to share their stories allowing Cystic Fibrosis Ireland to raise awareness of cystic fibrosis and advocate on behalf of the community.

WHY VOLUNTEER AS AN AMBASSADOR

Ambassadors play a vital role in helping Cystic Fibrosis Ireland achieve its goal to support people with cystic fibrosis and their families in Ireland. By becoming an Ambassador, you not only help CFI by giving your authentic voice to campaigns, you can connect with a community of people working towards a shared goal.

Ambassadors help to educate the wider public about what life with cystic fibrosis means and to enable you to do that, CFI commit to providing training, workshops and support to you in the role as Ambassador.Our workshops for 2024/2025 will shortly be published, so check back to find out what skills you can develop on this programme.

This is an opportunity to share your story and make your voice heard. To find out more, download the information leaflet below or get in touch if this sounds like a role for you. 

The 2026 dates for the meetings are below. Registration is essential and you can sign up below:

• Campaign overview - 20th January 2026 @ 7.30pm - register here
• Media training - 17th Feburary 2026 @ 7pm - register here

via Zoom 

Just some of the current projects CFI are involved in include:

• Advocating for groups such as those without access to modulator threrapy
• Member support 
• Funding several CF posts in hospitals nationwide
• Improving post-transplant care for CF Patients
• Research projects 
• PPI involvement
• Provision of a range of grants including exercise and fertility grants
• Advocacy work - such as the introduction of the new Parent Support Group

To support our work we require CF Ambassadors to share their stories, experiences and insights to help raise awareness and support fundraising campaigns and events. CFI will support Ambassadors with training and information and will work with people on an individual basis at whatever level they are comfortable with. 

Opportunities for Ambassadors in 2025 are varied and can include:

These stories and testimonials from the CF Community, as well as those from families living with CF are the voice of Cystic Fibrosis Ireland's campaigns and are crucial in communicating the impact of cystic fibrosis to the public.  If you are interested in sharing your story of life with cystic fibrosis and raising awareness of CF we would love to hear from you. Please contact Nicola in CF House on 01 496 2433 or email ndelaneyfoxe@cfireland.ie. 

Alternatively you can request a copy of our testimonial application by emailing ndelaneyfoxe@cfireland.ie and we will contact you very soon.