Cystic Fibrosis Ireland (CFI) is here to provide advice and information to members on any issue relating to Cystic Fibrosis.
CFI appreciates all information and concerns communicated to staff at CF House, by members, CF care staff and other interested parties. As the representing body for people with CF in Ireland, it is important for us to understand the real issues that people are facing at home and in the CF centres. Please use our CF Advocate Service or the National Office if you would like to discuss any such concerns in more detail.
Staff at CF House may be able to help resolve some issues directly. Others will contribute to wider advocacy campaigns and CFI strategy development in the medium to long term.
Member Services Team Contact Information
You can contact Member Services at any time by emailing: memberservices@cfireland.ie
Grants
Cystic Fibrosis Ireland (CFI) provides a range of grants for our members which are available provided an application is made, the grant criteria are met and there are sufficient resources. To find out more about these grants and support services, click on the grant title below;
Exercise and Physical Activity
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Exercise and physical fitness are of extreme importance for people with cystic fibrosis (PWCF). Not only is it a natural form of chest physiotherapy that increases lung capacity facilitating airway clearance, it is also instrumental for preserving mental well-being and quality of life.
One of the great things about exercise is that there are many activities that are free and accessible to all and often small changes to our lifestyle can greatly add to aerobic improvements.
We are very aware of the financial challenges that CF often presents and as such also have various financial supports available to our members which can help offset the cost of exercise.
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The Cystic Fibrosis Ireland (CFI) Fertility Grant provides financial support to people with cystic fibrosis (PWCF) and their respective partners who wish to undergo fertility assessment/treatment in the hope of becoming pregnant. Since this scheme was first rolled out in 2010, a total of 85 fertility grants have been awarded to members.
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Maintaining positive Mental Health and wellbeing is vital to navigating the challenges that arise in our day to day lives. Our mental health affects how we think, feel and also how we act, impacting upon our coping mechanisms, relationships and decision-making abilities. Mental health is vital through all the stages of our lives from early childhood through to adulthood.
CFI offer financial support for those wishing to avail of counselling services. These services may be a local provider that you have identified or alternatively we can help source an appropriate counsellor.
Whether it is individual support or family support we are happy to speak with you to understand and support your needs. This service extends to play and art therapy for the younger child as well as supporting siblings who may not have CF themselves but may benefit from engaging with a professional.
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CFI has limited funds available under the Social and Distress scheme to lend assistance to families of children with CF and adults with CF experiencing certain difficulties or financial hardship.
Requests for support through this scheme must be accompanied by a letter from the Social Worker or other health professional who has been involved in supporting the PWCF.
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Following the bereavement of a family member from cystic fibrosis, Cystic Fibrosis Ireland provides a bereavement grant to the next-of-kin to assist towards expenses incurred. The value of this grant is €2,000.
CF Ireland also offers bereavement counselling support to members. This is arranged with an independant counsellor at a location suitable for the individual. Please contact the CFAI National Office for more information on this service.
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We provide financial assistance towards incidental expenses (accommodation, meals and transport) incurred to members and their families who must travel for transplant assessment/ transplant.
The transplant assessment grant is €150 for assessments carried out in Dublin and €300 for assessments carried out in the UK. The transplant grant is €850 for members attending the Mater Hospital in Dublin, and €1,200 for those attending the Freeman Hospital in Newcastle, UK
