CONGRATULATIONS ON THE BIRTH OF YOUR BABY AND A WARM WELCOME TO CYSTIC FIBROSIS IRELAND (CFI).
A diagnosis of CF can be unexpected, emotional and overwhelming, and I am sure that you will have many questions about life with Cystic Fibrosis.
CFI have been helping families for over 60 years, providing a wealth of services, from grants to support groups. On this page, you can click below to be taken to information which we hope you find helpful.
New Born Care Pack and Information Leaflet
You can also listen to our member and parent of a child with CF, Julie Bernard, speak to Carewell Conversations sharing her story about managing a careerer while being a carer: 'Balancing your career with a family caring role- A family
carer's perspective'
And, when the time is right for you, we are here for you, for whatever you need - every step of the way and we look forward to meeting you and your little one.
Best wishes from
Bernie Priestley, CF Mum, Chairpersonand Volunteer, & all the team at CFI
The Parent Connect Team
The Parent Connect Team is a voluntary group made up of parents who have young children with CF. Supported by CFI, they are on hand to listen, support and offer resources, which you might find helpful. If you would like to be connected with another parent please reach our through email with your name and contact number and we will in touch parentconnect@cfireland.ie
New Born Care Pack and Information Sheet
Put together by the Parent Connect team, our information leaflet and newborn care pack is available for new parents whose child has been recently diagnosed with Cystic Fibrosis. The information leaflet has been carefully written in addition to a Q&A sheet that you may find helpful, particularly in the early days. We work closely with the Hospital Paediatric teams who hold the care packs for distribution. If you are yet to receive yours, please do let us know and we will organise for one for you. memberservices@cfireland.ie
Online Parent Support Group
When the time is right for you, there is also an online Parent Support Group which meets monhtly for you to join. These groups take place on the first Wednesday of each month and are an opportunity for you to connect with other, ask questions and learn in a safe space. If you would like to join, you can sign up here.
CF Advocate Service
The CF Advocates are people with Cystic Fibrosis and part of the CFI team. They support families in whatever way they can - whether you need advice on your rights and entitlements, are looking for practical information about living with CF, or just need a chat, they are there to help. You'll find an info sheet to download at the bottom of this page.
Contact us
To find out more about these supports, contact the Parent Connect team on parentconnect@cfireland.ie or the Member Services team on 01 4962433 or by emailing memberservices@cfireland.ie.