Congratulations to the CFRI, who have recently published two reports which you can download below.

The first is entitled 'CFRI 20 years and counting report'. This report marks the celebration of over 20 years of collecting data on People with Cystic Fibrosis (PWCF) in Ireland by the Cystic Fibrosis Registry of Ireland (CFRI).

The second is called 'Unlocking the potential of patient registries' and is published in conjunction with HRCI & NISR (dermatology registries). This guide builds on a previous version of a patient registry guide, jointly published in 2018 by HRCI and CFRI.

You can also find these reports on the CFRI website, along with their annual reports and much more information.