Zoom Meeting on the Forthcoming Extension of Kaftrio for 6-11 year olds 

Monday 16th May 7pm-8pm 

To participate in the webinar you will need to register. Registration details available shortly. 

Webinar Details 

CFI is hosting an online webinar on the forthcoming extension of Kaftrio for 6-11 year olds on Monday 16th May 7pm-8pm

The first part of the webinar will seek to provide information to those parents whose children will get access to Kaftrio later this month for the first time

The second part of the webinar will be for those parents whose access to Kafrtio is now likely to be delayed- a development that is completely unacceptable to CFI

The aims of the webinar are as follows:

• To provide a general update on the prescribing of Kaftrio to 6-11 years olds that will commence later this month, as recently confirmed by the HSE
• To provide an update to those whose access is currently being delayed
• To outline the proposed advocacy strategy of Cystic Fibrosis Ireland,  based on the learning from previous access to drugs campaigns
• To formally establish a Concerned Parents For Kaftrio advocacy group 

We very much hope you will be able to join us and please feel free to ask questions in advance that we will seek to answer as best we can based on available information on the night.

Send your questions to sbyrne@cfireland.ie 

Philip 

Philip Watt, CEO CFI