"I walk into my local pharmacy and can actually see Kaftrio on the shelf and can't have it, that is torture, absolute torture"

Grainne Uí Luing spoke to the The Sunday World this weekend about the ongoing impact of the decision to exclude her two daughters, along with 33 other children, from treatment with Kaftrio.

Read the full article here: https://www.sundayworld.com/lifestyle/real-life/kildare-mum-denied-access-to-wonder-drug-for-daughters-with-cystic-fibrosis/1270538698.html