CFI are putting together a patient submission to support the upcoming Health Technology Assessment for Kaftrio. The patient submission allows us to identify the priorities and preferences of people living with CF and to highlight the value that access to Kaftrio may have.
As part of this submission we would like to get the views of people with CF aged 18 and over and the parents/carers of children with CF and have created a survey to help us achieve this - link below. There are approximately 25 questions and it is important that we include the experiences of people who are currently taking Kaftrio as well as the views of those who are not.
We are hoping to receive as many responses as possible and we would ask you to share the link with others who are eligible to take part.
Thank you for your time and support.