At the end of March, Cystic Fibrosis Ireland conducted a survey to look at the impact of the new COVID-19 pandemic on the CF community in Ireland. As a result of your feedback in that survey we implemented a number of new schemes and information campaigns, including the PPE grant.

A research team in UCD working with Cystic Fibrosis Ireland conducted a follow up survey in September - October. This survey will take a more in-depth look at the ways PWCF and the parents of children with CF managed their day to day lives during the pandemic and the impact it had on the CF community in Ireland.

The survey is now closed. 

Please see the participant information leaflet below for more details on the project and whats involved.

For further information or if you have any questions, you can contact the Principal Investigators:

Professor Patricia Fitzpatrick
Full Professor of Epidemiology & Biomedical Statistics, University College Dublin, Woodview House, UCD, Belfield, Dublin 4.
Email: patricia.fitzpatrick@ucd.ie

Dr. Sarah Tecklenborg
Senior Research and Policy Coordinator, Cystic Fibrosis Ireland, 24 Lower Rathmines Rd, Dublin 6.
Tel: 01 496 2433
Email: stecklenborg@cfireland.ie

This research study has received Ethical approval from the National Research Ethics Committee (COVID-19) on 11th August 2020

For support, please contact Samantha Byrne, Senior Member Services Coordinator
Tel: 087 135 5228
Email: sbyrne@cfireland.ie