Agreement has been reached to make Orkambi and Symdeko CFTR drugs available in Northern Ireland. This news follows quickly on from the availability of these two important drugs in England and previously Scotland. It also follows on from the recent news that Trikafta has been approved by the Food and Drug Administration in the United States, 5 months ahead of schedule.
CEO of CFI, Philip Watt stated 'Many congratulations to the CF Trust in the UK. This decision will be warmly welcomed by patients and their families in Northern Ireland where there has been considerable frustration at the delays in providing these 2 crucial CF drugs. We would hope and urge that there are not similar delays for Trikafta, once it has been approved by the European Medicines Agency (EMA).’