Protest outside the Dail Wednesday 1 March 1.15pm

Cystic Fibrosis Ireland will be supporting a further protest outside the Dail in Kildare Street on Wednesday 1 March at 1.15pm. The aim of the protest is to highlight the urgent need for the government to approve the ground breaking Cystic Fibrosis drugs Orkambi (550 patients) and the extension of Kalydeco to 2-5 year olds and the R117H group (about 25 patients in total). 

Background: The protest is being led by Jillian McNulty who has CF and who has seen at first hand the benefits of being on Orkambi as she was part of the clinical trials for this ground breaking drug. We urge a further good turn out for this protest. More details to follow.