Cystic fibrosis is an inherited chronic disease that primarily affects the lungs and the digestive system. A defective gene causes the body to produce unusually thick sticky mucus that clogs the lungs and obstructs the pancreas, stopping natural enzymes from enabling the body to break down and absorb food. Approximately one in 19 are thought to carry one copy of the altered gene that causes CF.

People with CF experience a range of symptoms including frequent lung infections, persistent coughing, wheezing and shortness of breath, along with poor growth and weight gain in spite of a good appetite. Over time people with CF accumulate significant damage and scar tissue in their lungs which leads to end-stage lung disease requiring a double lung transplant if possible.

Cystic Fibrosis Ireland (CFI), established by parents in 1963, is a leading national organisation dedicated to improving treatment and facilities for people with CF and their families across Ireland. The organisation is dedicated solely to the well-being of people with CF in Ireland.

Its mission is to assist the development of the means to cure and control CF, to promote the interests and welfare of people with CF in Ireland and to assume advocacy for them and their needs resultant from their having CF.

It does this through providing information and education, advice and advocacy to people and their families, undertaking medical and scientific research, advancing the development of lung transplantation in Ireland, and offering grant assistance to patients.

CFI also funds a number of specialist CF clinical posts as well as providing capital funding for the development of state-of-the-art CF units around the country, including dedicated in-patient, day care and out-patient facilities.

CFI comprises 18 branches and one regional branch and is overseen by a national executive committee, which includes representation from people with CF and their families. For more, visit www.cfireland.ie.