Information for new parents

Cystic Fibrosis Ireland has an information pack for new parents whose child has been recently diagnosed with Cystic Fibrosis through the newborn screening programme. Please contact us on 01 4962433 for an information pack or see below links to these resources and our publications section for more information on Cystic Fibrosis.

To find out how to become a member of Cystic Fibrosis Ireland, please click here.  

Information Video for New Parents

The following information video has been produced as part of the 'Living with Cystic Fibrosis' series and is intended to provide support to New Parents following the diagnosis of their child with CF. It features parents speaking about how they coped after receiving news of the diagnosis, reflecting back on how far they have come since, and how CF is now just a part of their daily routine. The video also features adults with CF who speak about the advances that have been made since they were diagnosed, and how living with CF has not prevented them from realising their dreams. We hope that it will provide support and comfort to you, if your child has recently been diagnosed with Cystic Fibrosis.

CF Advocate Service 

The CF Advocates support people with Cystic Fibrosis and their families in whatever way they can. Whether you need advice on your rights and entitlements, are looking for practical information about living with CF, or just need a chat, they are there to help.

Click below to read this information sheet.   

CF Advocate Service Download

Alternatively, you can contact the Member Services Team below:

Name Position Phone Email
Samantha Byrne Member Services Senior Co-ordinator 01 496 2433 sbyrne@cfireland.ie
Caroline Heffernan CF Advocate 087 932 3933 cheffernan@cfireland.ie
Rory Tallon CF Advocate 087 932 3930 rtallon@cfireland.ie