Information for New Parents

Information for New Parents

Cystic Fibrosis Ireland has an inforamtion pack for new parents whose child has been recently diagnosed with Cystic Fibrosis through the newborn screening programme. Please contact us on 01 4962433 for an information pack or see below links to these resources and our publicaitons section for more information on Cystic Fibrosis. To find out how to become a member of Cystic Fibrosis Ireland, please click here.  

Information Video for New Parents

The following information video has been produced as part of the 'Living with Cystic Fibrosis' series and is intended to provide support to New Parents following the diagnosis of their child with CF. It features parents speaking about how they coped after receiving news of the diagnosis, reflecting back on how far they have come since, and how CF is now just a part of their daily routine. The video also features adults with CF who speak about the advances that have been made since they were diagnosed, and how living with CF has not prevented them from realising their dreams. We hope that it will provide support and comfort to you, if your child has recently been diagnosed with Cystic Fibrosis.

A Guide for Parents of Children Diagnosed with CF

Guide for New Parents

This booklet is intended as a guide for parents whose child or children have been recently diagnosed with cystic fibrosis (CF). It contains information about CF and coming to terms with a new diagnosis. It also includes information on how CF affects the body and what treatments are available, and provides answers to some questions other parents have asked.  



Entitlements For New Parents of Children with Cystic Fibrosis

Entitlements for New Parents

It can be a daunting process trying to navigate through all the possible benefits and allowances you and your child could be entitled to apply for. To make this process a little easier, we have developed this booklet specifically for new parents of a child diagnosed with Cystic Fibrosis.

The booklet aims to briefly outline the most relevant State entitlements that you may be eligible to apply for depending on your means and circumstances. Click here to find out more about the main payments, health service entitlements and tax credits/reliefs that could be available for you. 


Cystic Fibrosis Care

Cystic Fibrosis Care is an information sheet for new parents to help explain what care a child with Cystic Fibrosis will receive.

The roles of the individual Cystic Fibrosis team members are outlined and an overview of Cystic Fibrosis care centres is provided, along with what you should expect to happen at clinic appointments and annual assessments.

Click here to view this information sheet. 


How CF Affects Daily Life

How CF Affects Daily Life

This information sheet is intended to empower and encourage parents with the confidence to care for a child diagnosed with Cystic Fibrosis.

It outlines the importance of normality in the home environment, contains handy tips for parents and provides you with an idea of the daily routine for a child with CF.

Click here to read this information sheet.


Nutrition for Your Baby

Good nutrition plays an important role in your child's overall wellbeing. This information sheet will explain your child's special nutritional requirements and what is needed to ensure your baby grows well and gains weight.

Click here to read this information sheet.   



CF Advocate Service 

CF Advocate Service

The CF Advocates support people with Cystic Fibrosis and their families in whatever way they can. Whether you need advice on your rights and entitlements, are looking for practical information about living with CF, or just need a chat, they are there to help.

Click here to read this information sheet.   



Also of interest may be the following booklet, which was produced by the Cork City Childcare Company: How to Support a Child with Cystic Fibrosis (CF) in Pre-School: A Guide to Help Parents Navigate the First Steps into Pre-School Settings. 

See also our Publications library for other information sheets and booklets published by Cystic Fibrosis Ireland. Finally, don't forget to check out the 'Other Resources' section for further useful information, not directly produced by CF, which you may find helpful.