The Parent Connect Team is a group of volunteer parents who have young children with cystic fibrosis (CF). Supported by CFI, they are there to listen, offer support, and share helpful resources.

If you would like to be connected with another parent, please email your name and phone number to parentconnect@cfireland.ie, and we will get in touch.

The Parent Connect Team has created an information leaflet and newborn care pack for parents whose child has recently been diagnosed with Cystic Fibrosis (CF). 

The leaflet includes helpful information and a Q&A section, which may be especially useful in the early days after diagnosis. 

We work closely with hospital paediatric teams, who usually give out these care packs. If you haven’t received one yet, please let us know and we will arrange one for you. 

You can contact us at memberservices@cfireland.ie. 

When you feel ready, you can also join our online Parent Support Group, which meets once a month. 

These sessions take place on the first Wednesday of each month. They are a chance to connect with other parents, ask questions, and learn in a safe and supportive space. 

If you would like to join, you can sign up here.

CF Advocates are people living with Cystic Fibrosis who are part of the CF Ireland team. They support families in different ways — whether you need advice about your rights and entitlements, practical information about living with CF, or just someone to talk to.