Cystic Fibrosis Ireland Nationwide Series of Events
“In the changing world of cystic fibrosis, how can we best support you?”
30th May 2024
Cystic Fibrosis Ireland Chairperson, Bernie Priestley, and Interim CEO Sarah Tecklenborg, are hosting a series of nationwide events in June to meet with people affected by cystic fibrosis (CF) and their families in Ireland.
CFI was set up 61 years ago at a time when 40% of children with CF were not expected to reach secondary school age. Now, the outlook of a CF diagnosis is much more positive and the team at CFI are increasingly being asked about solutions to the current challenges of living life with CF. These include third level education options, fertility and family planning supports, work prospects, mortgages, pensions, menopause and more.
Despite the advances made, for many within the community the reality of living with this life-limiting, genetic condition remains an enormous challenge. The aim of these events is to ask everyone affected by CF “in the changing world of cystic fibrosis, how can we best support you?”
The in-person events are taking place across June and the CF community in Ireland are invited to come along and share their views on the future of life with CF and the support that CFI provide.
Registration is required for infection control purposes, and cross infection protocols will be in place at each event. An online meeting is also being facilitated for those who cannot or prefer not to join in person. The dates and locations of the meetings are as follows and CFI look forward to seeing as many of our community there as is possible.
DATES
- 10th June @ 7pm: Carton House Kildare
- 12th June @ 6.30pm: Oriel Centre, Dundalk
- 14th June@ 7pm: Castletroy Hotel, Limerick
- 15th June: 11am: SMA Hall, Cork
- 15th June: 6pm: Brandon House Hotel, New Ross
- 17th June: 7pm: Allingham Hotel Bundoran
- 18th June @ 6.30pm: PYM Studio, Galway
- 20th June @ 6.30pm: Parish Centre, Laois
- 4th July @ 7pm: online via Zoom
TO REGISTER
To register for the online meeting, please email info@cfireland.ie or click here to register for the online meeting.
