VOICE YOUR OPINION

“Pathways” is a research project that seeks to support adolescents with Cystic Fibrosis (CF) to successfully manage their health, as they prepare for their transition to adult services. We are particularly keen to understand more about how young people manage their health and their experiences of transitioning to adult services given the new treatments available to young people such as Kaftrio. To get started, we are inviting young people living with Cystic Fibrosis to join an online panel and act as our advisors.

We are looking for 10 young people to help ensure our research is focused on issues that are important to young people with Cystic Fibrosis. If you are aged 16 or 17 and would like to get involved or are a parent of a young person who might like to get involved, get in touch and we can send our information form. For those aged 16-17, you will need parental permission and we need to know you are also happy to be involved.

Are you a young person interested in shaping research designed improve quality of life for young adults with Cystic Fibrosis? Apply to become a member of our Youth Advisory Panel / Young Adult Panel